Publications
Fox, S., O’Connor, N., Drennan, J., Guerin, S., Kernohan, W.G., Murphy, A. and Timmons, S., (2020). Components of a community model of dementia palliative care. Journal of Integrated Care. ahead-of-print. doi.org/10.1108/JICA-02-2020-0013
The Model for Dementia Palliative Care research team published a paper ‘Community Components of a Model for Dementia Palliative Care‘, July 2020 in a special edition of the Journal of Integrated Care on ‘Integrated Palliative and End-of-Life Care for People with Advanced Dementia or Frailty’. This paper surveyed health and social care professionals, policy makers and academics interested in dementia palliative care across five healthcare jurisdictions (Republic of Ireland, Northern Ireland, England, Scotland and Wales). There were 112 responses to the survey which found that key care principles incorporated the philosophies of palliative care and dementia care. Person centred care and holistic care were seen as core for many. Important individual service activities which were identified were support for carers, advanced care planning, information, education and training, activities for ‘meaningful living’, comprehensive disease management, coordinated case management, and linking with community health services and social activities. The paper also explores barriers to the delivery of comprehensive dementia palliative care. The findings of this paper will help to inform the development of a novel model of dementia palliative care as part of our wider project. Furthermore, the findings will also inform service planning and design in other countries.